Update May 13,2010

Well Lochlan is still hanging in there. The distention is getting bigger and bigger each night and we are just praying that he continues to stool some to relieve some pressure. His appetite is getting less as the food is beginning to back up in his intestines and his sleeping has been getting worse as well. He has been complaining of tummy aches and says he unable to eat more than a few bites at a time. We are trying to get as many calories in him as we can, but I fear that he will continue to drop weight as he is not eating enough food. We are still hopeful that he will be able to hang in there and we can avoid the feeding tube, until the 25th of May (which is when the Specialist in KC worked us in sooner). We are so very thankful for his mercy on us as our original appointment was June 17th. Lochlan's behavior has been really difficult as well as he is stimming more and more, and his impulsiveness has really been trying. We will know more as time goes on and if he has dropped too much weight or has stopped stooling. We have an appointment in Omaha on Tuesday the 18th and our dr will decide then about the tube (if not sooner if things get much worse) if we can wait until the 25th to see the specialist. Thanks to everyone for your prayers.