Well our trip to Minneapolis' Integrative Medicine Clinic was very good. We were greatly impressed with their knowledge and were able to come up with some very good long term treatment plans for the boys. However, nothing for short term and we are still seeking answers for Lochlan's inability to digest and move solid food and his chronic distention. We will do more testing to check for more food sensitivities and what kind of bacteria/yeast that is in Lochlan's gut. We will also do the same tests on Sully to rule out any food sensitivities or bacterial overgrowth as he has some flags for both. The team had some great ideas such as aroma therapy, biofeedback and other things such as accupressure as well. We have a step by step plan to help Sully with his anxiety and it will not be quick but in time I really feel like we will be equipping him for life. The nutrionist had great ideas for us to help Lochlan to transition from formula when he is ready and we feel like once we clear this last battle with his bowels we will be set with a plan for the future. The team was great and both Cody and I were very impressed!
However not everything went great on the trip, during the last couple weeks Lochlan's behavior and "autistic symptoms" have escalated to numbers we haven't seen in almost a year. He was a nightmare on this trip and the new surroundings posed huge struggles for him as he could not overcome his obsession with the doors and lights in our hotel room. He is more aggressive and self injurious and the only thing we can think could possibly cause such an increase in these types of behaviors is the whey in the peptamen. The peptamen jr. contains milk proteins and this could possibly be our culprit. So, back to neocate formula we go. (this is the same formula he was weaning himself off of last fall on his own!) Our doctors are doing what they can to get us in to the motility specialists sooner than June and we may possibly be looking at taking him to the Nationwide Children's Hospital in Columbus, Ohio. As of Thursday he is no longer drinking the formula and even one ounce is a battle. After conversing with our team of doctors we have come to the conclusion that if he begins to back up and become distended as he was before the formula we would have no choice but to put a feeding tube in until we can get into the specialists. So now we sit and wait and pray for a miracle.
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