Well, the good news is Lochlan continues to hang in there despite what difficulties may come. On Friday the 14th I spoke with the specialists office in Kansas City. I wanted to make sure that we knew where we were going and that we would be able to go an get all the testing Lochlan would need that week. Motility testing is quite extensive and it measures the stools transit time as well as tests the muscles and so forth. This kind of testing can take days and so I wanted to make sure I had a good idea on how long we might be in KC. Not to my surprise, the receptionist told me that we would only see him for a consult on the 25th and any testing would be scheduled for another time. Currently they are scheduling motility testing 3 months out. I asked again if there would be any way to get it sooner and she told me the procedure room that it is done in is booked out that long. I had a feeling this would be the case. I called our doctor back in omaha and asked again if there was anyone else we could see or any other way to get in for the testing sooner. Their answer was no. Lochlan's distention has been getting bigger little by little and he is starting to back up, eat less and complain of tummy aches. We had planned to do some stool testing on him in a couple days to see what exactly is going on in there, but his doctor in omaha wants him to try the other antibiotic (gentamiacin) now and see if it will help his distention. We cannot do the stool testing as long as he is on antibiotics. So we will wait with the testing, and try the antibiotic.
It amazes me everyday how he can be so distended and uncomfortable and still have such a love for life and sense of humor. Despite his ongoing tummy troubles Lochlan is living each day enjoying what comes and looking forward to tomorrow. No wonder God instructs us to be like children. Imagine what our world would look like if everyone had this kind of determination and love for life.
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