Update 06.18.08

Well the B-12 injections have been an adventure all in themselves. I was having trouble injecting into the fatty tissue (because the boys have none!) and so we decided to give them every other day at a slightly decreased dose. It did the trick and we are no longer excreting B-12 shortly after administering the injection. Lochlan continues to spontaneous greet people and it is so awesome to hear his little voice speaking clear words. He is still in crisis mode most of the day and our SI behavior has been continuing to increase over the last week. It seems as though everyday the SI behavior gets more in grained into his being and it has become a reaction to almost anything that goes against his agenda. Today I watched in horror as he spent 38 minutes trying his hardest to hurt himself because he was upset. He wasn't looking to me for a reaction he was just kept getting madder and madder because what he was doing wasn't enough. We continue to pray for ABA and I have finally found someone to come and provide speech therapy. Let me tell you it is nearly impossible to get any therapy without at least a 6 mo waiting list!!! Lochlan has also been displaying more typical autistic traits and also more frequently; odd eye gaze, awkward finger movements, spinning and rolling on the ground, fixating on wheels. Sully continues to verbally stim and is more obsessive than ever. He will get fixated on bugs every time he sees one (which is very often this time of year) and sometimes it is a couple hours before we can redirect him.
On the supplement side-we have increased the Sacchermyces Boulardii (probiotic) to help kill yeast (I am actually seeing it in the stools). I just hope it will be enough and we will not have to move onto prescription anti-fungals. They are both continuing on Cod Liver Oil, Calcium, Zinc, Enzymes and Lochlan is on Colostrum. Last Friday we received their test results for the O.N.E (Optimal Nutrition Evaluation) test we sent in the end of May. I couldn't believe the results. Neither boy had any B-12 present (the labs were collected before we started the injections and 4 days after holding all other supplements). They both have GI dysfunction, mitochondrial dysfunction, malabsorbtion issues as well as their Citric Acid Cycle is really suffering. Their oxidative stress was elevated, as was the yeast and bacterial dysbiosis and In short- the boys are toxic, they aren't able to absorb the nutrients that they get and they have some mitochondrial (cellular) dysfunction. Not sure what the plan of action is yet but I am scheduled to have a phone conference on Tuesday with our DAN! Dr. To be continued....