Well summer is in full swing and we are struggling to settle into a summer routine. June is going to be one of the busiest months we have had yet full of traveling, birthdays, a wedding, company, a reunion, and father's day. I am praying that once July arrives we will have survived and some rest will be in sight.
Well many are wondering what is going on and I apologize at the tardy update! I thank everyone for their prayers and we really feel God's presence. The middle of may we did some food allergy and sensitivity tests on the boys as well as a stool analysis on Sully. The results of the food allergy and sensitivity were quite surprising as Lochlan had low reactivity to no reactivity to the 93 foods and 63 inhalants- quite a different story from his skin test. My only thought is that the specific carbohydrate diet has helped and also the antibiotics for the bacterial overgrowth. Sully however showed extremely high reactivity to MANY foods. Included pretty much everything has been eating lately- beef, eggs, cheese, almonds, all dairy products and wheat products, yeast and much more. With such a high reactivity it really suggests leaky gut and not true allergy. This could account for much of the OCD symptoms and anxiety symptoms as well. Since we have removed the foods of which their proteins are leaking into his blood stream-he is actually doing much better behaviorally. Sully stool test results also really surprised us as he has the presence of occult blood (this presence means there is probably bleeding in the small intestines-could be ulcers/colitis/inflammation...), extreme yeast overgrowth and bacterial dysbiosis-meaning he has more bad bacteria than good in his intestines. So we began treating the yeast with Nystatin 4 times per day we also added in Uva Ursi to treat the psuedamonias bacteria (bad bacteria). He continues to be on a low sugar/carb diet and we have successfully removed the foods in which he is sensitive. We have had one major set back as he has recently developed a fever and abdominal pain. I will consult with our doctor on maybe backing off the nystatin for a day or two and using garlic or some other natural remedy possibly to minimize symptoms of the die-off. I will keep you all posted.
As for Lochlan, he will be having a stool analysis done this week as he is off his antibiotics for now. We will be starting the antibiotics again as he is actually doing better than he ever has with the distention and stooling. He is going everyday and the distention is much more minimal than what it was. I believe the 2 weeks of antibiotics have killed enough bacteria that if we go on them again maybe we can kill the overgrowth and begin to heal the lining so that it will regain function. We are praying that the bacterial overgrowth is the culprit for all of his distention, malabsorption and dysmotility and if we treat it then we can resolve all these issues. There is hope! Meanwhile the dysmotility testing is actually closer to 9-12 mo out and I am happy that we have some time to entertain this idea before having to put Lochlan through more testing. His vitamin levels were okay and as long as he can keep his weight up we won't have to do anything drastic. He is still not eating great but we are working on it. His follow up with our GI doctor isn't until late July so we have some time to see if the antibiotics will work and look at the stool results.
Well that's about it for now. I will keep updating and thanks for all your support and prayers.
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