Sorry it took so long for an update. 600 miles, 3 different states and 2 different Children's Hospitals and we are finally home for now.
On Monday Lochlan had a small bowel series with follow through in Omaha at the children's hospital. Our dr. wanted to look to see if there were any anatomical problems with Lochlan's small bowel that could account for the chronic distention and other problems. He struggled with drinking the barium but after much persuading and counting each sip he did finally get enough barium down to complete the test. We do not have any results yet but are waiting to hear. Once he gets these results then we will move forward with scheduling more tests to figure out what Lochlan is having trouble digesting.
On Tuesday we were on the way to Kansas City to mercy children's hospital for our Dysmotility consult. The good news is that since Lochlan is not throwing up his food there is a really good chance we can fix his dysmotility issues. He did lots of blood work and took some xrays. Lochlan will need a colonoscopy and some sort of esophageal test (I am not sure of the name) he will also need dysmotility testing but that will be a few months out. After he gets the blood results he will try to get with a dietitian and see if we can't figure out foods that he can tolerate so we can avoid the feeding tube. Lochlan has been having lots of anxiety about the feeding tube and he has started having nightmares, we are pretty sure they are about feeding tubes and needles as he is crying about them in his sleep. So we are really trying to minimize his trauma as he has been through tons of testing already and there is so much more to do. The specialist in Kansas is only a dysmotility specialist so we will continue to work on the malabsorption issues and bacterial overgrowth issues with our dr. in Omaha.
So we are waiting and again and really trying to be patient. Lochlan's distention is still causing issues and we are praying that we can figure out a way to help him while we endure the wait. He was having so much diarrhea on the antibiotic (this was the second one) that we had to take him off it again as he was becoming dehydrated and his body could not physically handle the stress of it. We did do some other testing for food sensitivities through our regular doctor and we are anxiously awaiting those results too. So I guess thats about it for now. We will continue to wait and keep updating, thanks to all those who are praying for us. We can really feel God's presence and assurance that he will work this all out and we just have to rely on him and his timing.
On a different note- Lochlans love of movies has really blossomed lately and he and Sully crack us up by re-enacting scenes from movies they have seen. One of his favorite in particular is Astroboy. And in one scene they are standing at the door, they knock and another girl opens a slot and asks for a password. The other girl replied "don't make me hurt you!" and the girl behind the door says "i guess that will work" and opens the door. Sooo. We were at childrens in kansas city and I took Lochlan into the bathroom. He ran ahead and locked the stall door before I could get there. I told him to open the door. He said "what's the password?" I said "Lochlan open please". He said "say, don't make me hurt you, mom." Normally this wouldn't bother me, but there just happened to be another woman at the sink washing her hands. She smiled as she heard me tell my four year old "don't make me hurt you". I was so embarrassed as I had no idea is she had ever seen the movie or if she would have wondered where a small child would come up with something like that. Anyhow, thats all it took and he opened the door.
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