DAN! Appt,Supplement change and Methyl B-12

Since going on the Gluten and Casein Free diet we have started seeing a DAN! Dr. in Omaha and are giving the boys supplements. We also take the boys to Occupational Therapy once a week. We are waiting for an insurance waiver to begin ABA therapy for Lochlan. The boys also get early intervention from our public school. By far the intervention with the biggest results has been diet changes and supplementation.

Last week we went to Omaha to our DAN! Dr. to do a supplement check and discuss Lochlan's steady increase in self-injurous behavior. We discontinued the Intrakid as now that we have added many other supplements it has begun to block some pathways. We also discontinued the vit C supplement as his stool analysis came back full of yeast (vit C can feed yeast). We decided to do a ONE (optimal nutrition evaluation) test from Genova labs for each boy to see what they are lacking and then have a pharmacy compound a multivitamin tailored to each boy's needs. The test was only 95.00 ea and in the long run would save us much money. We also decided it was time for B-12 injections as the boys were making little progress with the foot patches. It is just utterly amazing how such a tiny body and being exposed to the world for such a little time could be so toxic.(the vaccines play a huge role in toxicity) The plan is use the B-12 injections to raise the Glutathione levels and help them excrete the toxins. We also changed over to a Houston Lab enzyme called Trienza (a broad spectrum enzyme) as well as increase the amount of probiotics to get help get rid of yeast. Dr. Leann explained how at the recent DAN! conference it was said that enzymes and probiotics are so important to include even with the gfcf diet. I am also considering giving the specific carbohydrate diet (SCD) a chance as it will help decrease the yeast issue. I love how it feels to go to our DAN! Dr. and feel like we actually have a handle on things. For one day I feel like I know what I am doing and that we have a very specific plan.

The boys' current conditions (3 wks previously off supplements )and 2 days into new regimen including 1 B-12 injection:

Sully is verbally stimming most of the time and is not following directions. He is back acting like he doesn't even hear you. His eye contact is suffering and he is very anxious and mouthy. He is getting overstimulated very easily and the littlest noise or smell will set him off. He obsesses about bugs and it not easily redirected.

Lochlan spends most of his day stimming with our coat closet doors-opening and shutting.... He has very little spontaneous language (5-10 words) and his eye contact is also suffering greatly. He is upset most of the day as he has no way of communication and his first response is to be self injurous. (I do believe that the SI behavior is mostly behavioral and will continue until we can give him some mode of communication.) We did get a soft helmet for him so we can go out in public and still keep him safe. He is head banging and doing other SI (self-injurous) behavior some days more than 50 times per day. We are watching him slowly slip further and further into his own world. We are hoping the new regimen and the B-12 injections will stop this downward spiral and help bring him back to us.


The Methyl B-12 injections are to be given every third day. The first injections we gave to the boys while they were awake and they honestly didn't feel it.(thanks to the numbing creme and extremely short needle) Lochlan's first injection was on Wednesday of this week and yesterday he was a bit more fussy and clingy. Other than that there wasn't any change. Sully's first injection was yesterday and I will see how he responds today. For more info, testimony and great video footage of the results of the Methyl B-12 go to www.drneubrander.com. This helped us in our decision to administer injections.